Get in touch
Join our community, ask a question, or reach out about donations and support.
Contact the Foundation
We look forward to meeting you and helping you find the right next step.
General Questions
Email the foundation for community questions, support, or general information.
info@jansen-devries.orgDonations
Reach out with donation questions, giving support, or fundraising inquiries.
donations@jansen-devries.orgMailing Address
The Jansen de Vries Syndrome Foundation
PO Box 14
Natick, MA 01760
Helpful Next Steps
If you are newly diagnosed or just finding the foundation, these links are a good place to begin.
Community
Read family stories and connect with others who understand the journey.
Visit the community page