Medical Advisory Board
Research-informed guidance for the community.
The advisory board helps the foundation stay connected to research, clinical understanding, and future opportunities.
Mission of the Advisory Board
The JdVS Foundation is committed to spreading awareness and educating communities about Jansen de Vries Syndrome. A crucial part of that mission is staying actively involved with research related to JdVS and the PPM1D gene.
The Medical Advisory Board helps the foundation interpret current research, answer medical and scientific questions, and review future research ideas as the foundation expands its grant and support work.
How the Board Supports the Mission
The board brings together professionals with different forms of expertise to help the foundation make better-informed decisions.
Interpret Research
Help the foundation understand emerging research findings and what they may mean for families and clinicians.
Answer Questions
Provide insight into medical and scientific questions that come up as awareness and diagnosis continue to grow.
Review Future Proposals
Support thoughtful review of future research proposals as the foundation continues building its charitable grant work.