Media

Stories, webinars, and conversations in one place.

Watch educational videos, revisit community conversations, and explore podcast platforms that can help families, caregivers, and professionals stay connected to JdVS-related content.

Our Mission

Raising Hope, Together.

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Latest Videos

Explore recent videos from the JdVS community, including family stories, educational sessions, event highlights, and other encouraging updates.

If the latest videos do not appear here right away, you can always visit the full YouTube channel to watch the newest uploads directly.

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Video can be a helpful way to learn, feel connected, and share the JdVS story with family members, friends, teachers, and care teams.

We hope this space makes it easier to find meaningful conversations and community moments in one place.

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Latest Videos

Fresh content from the JdVS channel, pulled in automatically from the public videos page.

2025Summit News from Radboud (Dr de Vries and Jolijn Verseput) JdVS Summit
Recent upload

2025Summit News from Radboud (Dr de Vries and Jolijn Verseput) JdVS Summit

83 views

Watch on YouTube
2025Summit Novel Animal Models of JdVS (Dr Vivian)
Recent upload

2025Summit Novel Animal Models of JdVS (Dr Vivian)

36 views

Watch on YouTube
2025Summit Clinical Overview and Update (Dr Curry)
Recent upload

2025Summit Clinical Overview and Update (Dr Curry)

30 views

Watch on YouTube
2025Summit Neurodevelopment and Neuropsychological Testing (Dr Jenny Klein Sosa)
Recent upload

2025Summit Neurodevelopment and Neuropsychological Testing (Dr Jenny Klein Sosa)

34 views

Watch on YouTube

Podcast Appearances

Listen to direct podcast episodes, interviews, and conversations connected to JdVS, rare disease advocacy, and family stories.

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