Media
Stories, webinars, and conversations in one place.
Watch educational videos, revisit community conversations, and explore podcast platforms that can help families, caregivers, and professionals stay connected to JdVS-related content.
Our Mission
Raising Hope, Together.
Latest Videos
Explore recent videos from the JdVS community, including family stories, educational sessions, event highlights, and other encouraging updates.
If the latest videos do not appear here right away, you can always visit the full YouTube channel to watch the newest uploads directly.
Watch and Share
Video can be a helpful way to learn, feel connected, and share the JdVS story with family members, friends, teachers, and care teams.
We hope this space makes it easier to find meaningful conversations and community moments in one place.
Channel ID: UCAOVfY5ZUILPPWwfK4Hu_RQ
Latest Videos
Fresh content from the JdVS channel, pulled in automatically from the public videos page.
2025Summit News from Radboud (Dr de Vries and Jolijn Verseput) JdVS Summit
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Watch on YouTube
Podcast Appearances
Listen to direct podcast episodes, interviews, and conversations connected to JdVS, rare disease advocacy, and family stories.